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Do Parents of Children With Autism File More Lawsuits?

 

As the number of children diagnosed with autism has increased over the last few years, new research finds these students are disproportionately involved in lawsuits about whether they are getting a free appropriate public education in the least restrictive setting as required by federal law.

A new study by Lehigh University education and law professor Perry A. Zirkel, recently published in the Journal of Special Education Leadership explores this issue.

Professor Zirkel found that children with autism were involved in nearly a third of a comprehensive sample of published court decisions concerning the basic tenets of federal special education law. He also found that when comparing this litigation percentage with the percentage of students with autism from 1993 to 2006, the ratio was approximately 10 to 1. In other words, Zirkel writes, "special education court cases are over 10 times more likely to concern a child with autism than the proportion of these children in the special education population."

Does that mean children with autism are more often being denied services they're entitled to compared with other children with disabilities? Not necessarily, though it's hard to say for sure.

Professor Zirkel's report says advocacy groups may be part of the reason behind the high number of cases involving children with autism. "As a result of the disparity between interest groups' prescriptions and school districts' prevailing practices, with the underlying mutual motives of high costs and methodological controversy, it is not surprising that the parents of children with autism would be more prone to litigation than the parents of children with other disabilities." (Interest groups, what do you say to that?)

Special education has a reputation for triggering conflict between parents and school districts to the point that when President George W. Bush signed the 2004 version of the Individuals with Disabilities Education Act into law, he noted that the latest iteration of the law was intended to be less litigious.

"When schools are so busy trying to deal with unnecessary and costly lawsuits, they have less time to spend with students. So we're creating opportunities for parents and teachers to resolve problems early. We're making the system less litigious so it can focus on the children and their parents," he said at a White House press briefing at the time.

Regardless of those changes in the law, however, there are still plenty of conflicts between parents and school districts over special education services and placement.

But in the case of autism, there's more to the story of so much litigation. Professor Zirkel says, aside from advocacy groups' involvement, the disproportionate number of autism-related lawsuits may be because of school systems' limited success in effectively addressing this complex disability, one that scientists and researchers and families still have a lot to learn about.

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Califather 

11:21 AM on November 21, 2011

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Thank you. Very interesting. I question the professor's conclusion that parents of autistic kids sue too much. Maybe parents of kids with other disabilities sue too little. In my own experience as the father of an autistic child and a special ed teacher I have found that it is always best to carry a big stick, the only thing districts pay attention to in these hard times.

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MassDad 

1:06 PM on November 21, 2011

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The professor, from what I read above, did not claim that "parents of autistic kids sue too much". I think Califather needs to keep his own emotions out of it and read what is really there. And yes, I'm the parent of a student on the spectrum. And my experience is that the parents that use "the big stick" as suggested by Califather in the end get less for their kids. My experience is that most educators would rather work as a team with families. Constantly carrying a big stick simply pushes people away.

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JKershenbaumEsq. 

5:33 PM on November 21, 2011

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I am a special education attorney in the Philadelphia area and I would certainly agree that the majority of my cases involve children on the spectrum. While I've never studied this scientifically, I suspect the reason for this trend is a combination of factors, including prevalence of the diagnoses, relative severity of educational need, poor training of school personnel (especially special education administrators) and a statutory/regulatory structure that was not designed to deal with this particular diagnosis. Of all of these factors, I tend to think that severity of educational need (and correspondingly inadequate services by school districts) is the biggest contributor to the frequency of litigation. I can't prove this, but it's my casual observation. Kids on the spectrum need a lot of services, many of them quite intensive and frequently one-on-one. They also frequently need a smaller school environment – something that is all but impossible for public schools to provide. As a result, there is often an intractable conflict between what the kids need and what the schools can/will offer. With more private schools catering to kids on the spectrum, parents are less content to settle for minimal and ineffective services for their autistic children.

The federal and state laws governing special education were designed to promote inclusion. This is a noble goal that is greatly preferable to the model of exclusion and isolation that pervaded American education before these important laws went into effect. So, until public schools better understand how to create inclusive environments for autistic children – and, as importantly, until they better understand when inclusion is NOT appropriate for a particular child – there will be litigation. The science and pedagogy are years behind where they need to be, and the laws are years behind the science and pedagogy. Until that changes, I expect that the great majority of my cases will involve children on the spectrum. Of course, better funding for public schools to serve kids with special needs would greatly help as well!

I'd like to invite you to check out my firm's website: www.mykidslawyer.com,  and a humorous video my law partner and I created about the struggles parents often face advocating for their children with special needs in school: http://www.youtube.com/watch?v=A6fcIqUHz8Q.  Please feel free to share it.

Josh Kershenbaum, Esq.
Frankel & Kershenbaum, LLC

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Colin Purrington 

8:19 AM on November 22, 2011

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Autism has a genetic component, so parents (who provide their kids with alleles) are going to be a different than parents of kids with different disabilities. It seems possible that differences in parent personality might make the different groups of parents sue at a different rate. E.g., parents with off-the-charts math ability might be tuned into quantitative measures of how much educational parity their kids have, and also might have high-end job that leaves hundreds of thousands of dollars available to litigate when they feel so moved. Conversely, parents of kids with shaken-baby syndrome, fetal alcohol syndrome, etc. might have diminished resources and perhaps diminished ability to perceive educational injustice. Just a thought, but it should be part of any calculus I think.

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JEB 

3:18 PM on November 22, 2011

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The large number of therapies and interventions that have been put forth as effective educational practicies for children with autism must also play a part in this disproportion. Other disabilities have far smaller menus of possible services that are known to be helpful; students with autism have, at one and the same time, a larger menu but often far less research validation for any proposed service. On top of that, there is the reality that children with autsim show a wide range of responses to each of the possible interventions or educational options. It's no wonder that conflict arises.

 
 

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